Sorry it took so long to get everyone updated. It's been a long month. Owen's surgery went well. He had some issues with sleepiness and low oxygen after surgery that required some supplemental oxygen, but once the anesthesia really wore off this corrected itself. He really did great in the hospital. He just wanted Mom to hold him, but he slept fairly well and ate pretty good. We discharged first thing the next morning. They had given Owen multiple doses of IV steroids during and post op due to his small size and oxygen dropping. They were worried about swelling so that's why the steroids. They worked great, but unfortunately IV steroids are rough and little man had a tough 3 days post op. He just could not sleep at all. Maybe 45 minutes at a time and it would take up to 2 hrs to get him to sleep. I won't lie. It was a rough couple days.
Let me tell you something else that happened those first few days. Our little Konnor man showed his true big brother colors. I have watched this little man mature so much in the last month. As soon as we got home we reviewed again about Owen's owies and that he couldn't have anything crispy, crunchy or hard to chew. Konnor immediately went to the bathroom and got a box of bandaids for Owen's owies. He was constantly saying "Owen, I know it hurts. Here Owen this is for you. Mommy Owen is hungry. Mommy Owen tried to put his fingers in his mouth." Anything to help me. Owen has been super fussy since surgery, super fussy, and Konnor has really done awesome in dealing with everything. He has been so gentle with him and is always saying "it will be okay Owen."
Unfortunately 3 days post op Owen developed a cold and by 5 days post op we could see his soft palate was starting to open up again. We saw the surgeon a few days later and he said to suppress the cough, stay on a soft diet another month and see him back. He was confident it would start to heal on it's own. The good news is that the soft palate does appear to be healing, but I think we have a fistula somewhere else b/c he has food leaking from his nose. : ( My heart hurts for him just thinking about him having to do this surgery again next year. We see the surgeon again in a week and a half so we will see what he says at that time.
I was able to stay home with Owen for the first two weeks and then headed back to work. Overall he really has been a trooper. He has had so much happy in his short little life, and I just can't believe how well he has handled everything.
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